Treatment. Yeah, that’s been interesting. My insurance company denied the PA for me to continue with a medicine that has worked quite well for five years.  I am appealing.  Meanwhile, my doctor’s office has provided samples.  It’s a little weird to be handed $7K worth of medicine samples to tide me over during the appeal process.

The summer has been crazy.  Those whose blogs I subscribe to have filled my inbox with updated posts, but I have rarely clicked through to comment (although I mean to).

My two younger sons continue to participate in sports. This involved 83 events in May and June, plus practices. In July I collapsed from exhaustion — which I count as a victory. In the months before my diagnosis, I pretty much had to be home by noon because I was wiped out by then. Keeping on the go like I did is a testament to the effectiveness of my treatment.  When I was first diagnosed, there is no way my kids could have participated in sports.  Now they can.

In addition to all the sports, spring saw my older daughter fundraising.  She left the country July 1 for a training program to do medical missions work. She will go to Kolkata next and will spend two months in India, followed by one month in Bangladesh.  She is scheduled to be home for Christmas.

My younger daughter leaves next week for college. She’s planning to earn an exercise science degree and then apply to grad school to become a physical therapist.  We’ve been doing all the normal stuff one does to get a child ready to leave for college.

My oldest is about to begin his senior year of college (still a 4.0 engineering student).  He had an internship in Houston over the summer, but called one weekend and said that Christmas was too far away; he wanted to come for a weekend visit.  On that visit, he brought a very nice young lady for us to meet. Guess my kids are growing up.

We will be down to only two kids in the house this fall. The older one has developed an intense weight training workout and spent a couple hundred dollars of his own hard-earned money on some basketball skill-drills in an effort to improve his game.  Both boys are playing sports this fall before basketball begins in winter, too.  Fortunately the older one got his driver’s license over the summer, so I won’t have quite so many chauffeuring duties.

I saw my rheumatologist, and she is ambivalent about my official diagnosis.  Despite the dermatologist’s report, she sees no reason to switch my diagnosis from RA to PsA.  Her philosophy is that my diagnosis can be whatever will get my medicine approved by insurance, and it doesn’t really matter what label is used.

In the beginning, when I first was referred to rheum, I had follow-up appointments every two months.  In time, those follow-ups have gotten further and further apart.  Now I don’t have to go back for six months.  There was a time that I would have been appalled at seeing a doctor twice a year.  Now I’m thrilled that it’s only two instead of six.  It’s amazing how perspective can change.


5 thoughts on “Personal

  1. It’s so hard to deal with all we have to in our “normal” lives, and then to deal with things like scripts, Docs visits and heavens, the fatigue!! I hope you get the medication issue resolved since your current regimen seems to be working. Many of the biologic medication manufacturers have support programs and will help pay for the most of the cost for you. If all else fails, maybe that’s an option!?!?

    Keep on trucking.

  2. Nice to hear from you Socks. Sounds like your lsummer was on overdrive. Sorry to hear about your insurance problems. Seems like insurance companies are just making it harder and harder to just get what you need to be well. My insurance views my biological as a medical procedure since I have to inject it. Thus it is not covered by my prescription plan. I have to meet my deductible before they will pay a dime and even then I have to pay 20% of the cost. I guess a lot of companies are doing this. Good luck with your PA. hope it comes through soon.

  3. First it’s wonderful to hear from you. No wonder your blog has been quiet with all that’s going on with you and your family. (Yes, it’s amazing the kids are as old as they are …) As Dr. Synonymous says, “Onward!”

  4. I didn’t realize you have such a large family too! Fun times…keep us from getting rusty, for sure. It’s kind of funny. Once you’re getting help, they don’t care what your diagnosis is. When you’re still in the proving-there’s-a-problem-phase, diagnosis is everything. Glad to hear you are down to 2 visits/a year! That is encouraging.

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