The young woman who’d so cheerfully introduced herself as my nurse when I was admitted to the hospital returned to my room about ten minutes later. Now looking afraid, she stopped hesitantly only a few steps into the room and explained that there would be a different nurse assigned to me since she was expecting a baby and I was taking methotrexate.
Methotrexate, unlike tons of other prescription medications, comes with a black box warning. Patients are told to be careful to avoid infections because one could be deadly, and are given a host of other instructions. There are apparently some things they never tell us about this medication, though.
More than once I heard people talking at my door stop as they were about to enter, then one would tell the other, “Uh-oh. Someone else will have to take this room.” Apparently people taking methotrexate are worse than lepers.
Later I discovered that my hospital room had this sign on the door:
Part of me thought, “This is ridiculous. It’s not like I’m exuding the stuff through my skin.” Another part of me wondered why they were so concerned about methotrexate, but not about Cimzia.
It turns out that although methotrexate doesn’t ooze out the pores, it can be found in bodily fluids for 72 hours after a dose is given. Since medical people deal with blood, vomit, urine, and the like, they really do have to be careful when patients are taking methotrexate.
Had I known that, I might have been able to alert people from the very beginning: “I’m taking mtx; please make sure my caregivers are people who aren’t trying to have a baby.”
Women expecting a baby try to do everything possible to have a healthy baby. Seeing the look on that poor nurse’s face, I imagine she was beside herself. She looked to be about eight months along, and spending the next month worrying what she might have done to her baby couldn’t be good for either of them. It wasn’t until a few days later that I learned what the concern with mtx is, and I asked my nurse if she could track the other nurse down and let her know that my last injection was beyond the 72 hours, so she and her baby were in the clear.
That should never have happened. Had I known that it was an issue, I would have told them from the start. Wouldn’t we all do that? Shouldn’t we all do that?
A stranger’s baby shouldn’t suffer birth defects due to the medicines I’m taking.
I’m adding a note to my cell phone (where I keep my meds list): Cytotoxic agents. If there’s ever a next time, that information will be among the first provided.