What happens when you get sick and your doctor refers you to a specialist? Sometimes you feel like you’re the ball in a pinball machine, bouncing this way, then that. “Go here for this test, there for that test, then see this doctor who will send you somewhere else for more tests. And here’s a referral to another doctor who will want more tests.”
It’s frustrating! If it will help you to know what to expect when you’re referred to a rheumatologist, read on…
A rheumatologist will schedule 1-1/2 to 4 hours for your initial appointment – ask when you make your appointment how long you should expect it to take. Get a babysitter, if you have children. This is too long an appointment for your kids to have to be at the doctor’s office with you.
When there’s a lengthy waiting period between your PCP’s referral and your initial appointment with the rheumy, you can request that the office mail the paperwork to you. You’ll be happy to not have to rush through it in the waiting room. (Tip: If you take the extra time to type your answers on the paperwork, the doctor’s front-office staff will be thrilled to not have to try to decipher your penmanship.)
A rheumatologist needs tons of information to make a diagnosis – that’s probably true of any doctor. If you’ve never compiled a detailed medical history, now is the time. Once you’ve done it, you’ll never have to search for the information again. It’s worth taking the time to do it right. It took me days to gather all my information – I even wrote to aunts, uncles, and cousins for the big picture (and learned that there is a history of a few genetically-linked diseases in my family, but nobody had been telling anyone else about their doctor’s appointments).
I’m on my second rheumatologists. There’s very little that they didn’t both ask about, and based what others have indicated, it appears that other rheumies want similar information:
Name, address, date of birth, and insurance information are obviously required. The RD will also need to know who referred you (not just because doctors get paid more for a consultation than for patients who decide on their own who to see). I highly recommend including your referring doctor’s complete name and address. If you say “Dr. Doe” your records might end up at any Dr. Doe’s office. If you say, “Dr. John A. Doe, Greatest PCP Clinic, 1234 Main Street, MyTown” there’s more chance of your referring doctor actually receiving a report.
- Briefly describe your present symptoms
- Approximate date symptoms began
- Previous treatments for this problem, excluding medication (physical therapy, surgery, injections)
- Do you have an orthopedic surgeon
- Other doctors you have seen for this problem
- Marital status, number or people in household, their ages
- Occupation? Number of hours worked per week?
- Do you live in house/apartment
- Do you have stairs to climb? How many?
- Who does most of the housework? Shopping?
- Are you receiving disability? Applying?
- How many cups of caffeine per day?
- Alcohol use/amount? Tobacco use/amount? Street drug use/amount?
History – Biological Father/Mother/Siblings/Grandparents
(If something significant shows up in cousins, I’d make a note of that, too)
- High Blood Pressure
- Kidney Disease
- Alcoholism/Drug Addiction
- Lupus (SLE)
- Rheumatoid Arthritis
- Blood Clots
- Heart Problems
- Bleeding Tendencies
- Kidney Disease
- Ankylosing Spondylitis
Personal Medical History
- Date of last tetanus shot
- Date of last pneumovax
- Date of last TB test
- List previous operations type/year/reason
- Do you have a history of any of the following illnesses: Cancer, leukemia, lymphoma, seizures, epilepsy, bad headaches, stroke, blood clots, cataracts, pneumonia, asthma, diabetes, arthritis, rheumatoid arthritis, osteoarthritis, childhood arthritis, psoriasis, osteoporosis, heart problems, stomach ulcers, colitis, rheumatic fever, kidney disease, lupus, ankylosing spondylitis, jaundice, nervous breakdown, gout, goiter, gonorrhea, syphilis, herpes, Chlamydia, HIV/exposure, fractures, other significant illness or arthritic conditions
- List present medications, dose per day, taken since (date), Helped: a lot/some/not at all
- Past arthritis medications (lists of otc, nsaids, dmards, biologics, and narcotics – mark those that you’ve tried)
- Allergies: medication/reaction
This means that the doctor looks at how all the systems in your body are working: eyes, ears, nose, mouth, throat, neck, stomach and intestines, blood, kidneys and bladder, heart and lungs, muscles/joints/bones, skin and hair, nervous system, general…
Knowing the background that the doctor will ask about should help you be prepared to complete the lengthy paperwork required for your first appointment with a rheumatologist. This post was getting too long, so the physical exam is covered in my next post.