The Party

What a great evening last night was!

Cocktail hour began at 5.  As a handshake preventative, I carried a small handbag in my left hand and a glass in my right.*  This was quite effective in making people realize that it was impossible for me to shake hands.  Out of 198 people in attendance, only one person squeezed my fingers.  Success!

Most people actually wore their name tags, and I’m finally getting the hang of small talk, so the mingling portion of the evening went well. At one point I was trapped in a conversation with somebody who droned on and on about how awful her fibromyalgia is and how nobody understands what it’s like to be in constant pain (fwiw, this is not an appropriate response to, “I like your dress”).  I came away realizing one of the reasons that I dislike revealing personal medical information.  Just because I’m in pain doesn’t mean I have to be one.

Door prizes were given away after dinner.  The company goes all out; door prizes include things like a ps3, a dvd player, a notebook computer, gift cards to a fancy restaurant, a couple cameras, gift certificates to a local spa… Good prizes.  Even better, I got to sit and watch someone else award the door prizes.

In addition to these, the company donated a flat-screen television to be raffled off.  Proceeds from the raffle tickets are donated to the local children’s hospital.  $1600 was raised, and the company will match that contribution.

Pills.  I’d decided to excuse myself and leave the room, however I got the lucky seat at our table and it wasn’t necessary after all.  It might have helped that I decided to wear subdued colors instead of my Christmas red dress that seems to attract attention.  With my back to most of the room, I wasn’t quite as noticable as sometimes (we sit at the head table, and some years it’s felt like we were under a microscope).  We’re in a new location with different setup, so it felt much more comfortable.  Most people were focused on the conversations at their own tables, and with my back to the room I could be inconspicuous.  It worked pretty well to hold my pill-box in my lap and take one pill at a time.

Thank you again for all the ideas.  I was prepared to leave the room, but ended up just taking the pills at our table with only a few people noticing.

 

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Note:  The glass was cold.  90 minutes of a cold hand.  Brrrr.  Next year I’ll wear gloves.  However, it’s very nice to be taking a calcium channel blocker to prevent headaches, instead of a beta blocker.  Beta blockers can make Raynauds worse, but CCBs can be used to treat Raynauds.  It was very nice to keep the blood circulating in my fingers.

Raynauds

As winter approaches, I find myself wondering what the next few months will hold.  I’ve had Raynauds for over thirty years — lots more experience with it than with RA!

Dealing with it is second-nature.  In fact, I didn’t even think to mention to my PCP until a couple years ago.  Some people might find that odd, but I never mentioned to him that I breathe, either.

It’s always been there.  I’ve dealt with it for so long that it honestly never occurred to me that it might matter.

Known variously as Raynauds Syndrome, Raynauds Phenomenon, and even Raynauds Disease, (sometimes spelled Reynauds), this is a bizarre situation in which the blood stops circulating to extremities.  Typically it affects fingers and/or toes, but sometimes the nose, too.

As a kid, I thought it was kinda cool that my fingers and toes did something that nobody else’s did, but when my dad found out, he freaked!  He had seen cadavers, and didn’t at all like the way my hands looked.  I convinced him that it happened all the time when I got cold, and that all I had to do was soak my hands in warm water to get warmed up again.

My grandmother, however, was a different story.  I spent a week visiting her one summer, and it didn’t matter one bit to her that my dad knew about it, or that we’d come to see it as peculiar, but ordinary for me.  She had me in to see her doctor immediately.  (Even though it was so long ago, I remember the blood draw, because it was the first time anyone other than my mom had drawn my blood.  And the lady did a crummy job.  She poked and jabbed and couldn’t find a vein to save her life.  I was incredibly sore, starting to feel like a pin cushion, and finally sobbed, “My mom always uses the other arm.”  So she switched arms and succeeded on the very first try.  Grandma said that the lady felt awful about it. Not that any of that matters.)

So Grandma’s doctor diagnosed my ten-year-old self with Raynauds and said there wasn’t really anything that could be done.  I should stay warm and avoid situations that caused the blood to quit circulating.  I guess we never thought about the fact that there are new discoveries in medicine all the time, and that maybe someday there would be treatment options.

Anyhow, enough rambling.  I started out to give a few tips on how I cope.

Gloves.  You can never own too many gloves.  I have gloves in the pockets of every coat that I own – some coats have two pair.  I keep a couple pair of driving gloves in the coat closet.  I keep driving gloves in the car (okay, in both cars).  I keep a pair of gloves in the kitchen with my potholders – I can put them on before removing items from the freezer (on days that I’m really cold, I even wear the warm gloves with a pair of rubber gloves over the top to wash vegetables).  There are gloves in all of my purses, too, and I use them in the grocery store if I have to reach into the freezer.

Socks.  My login is WarmSocks.  Wool, llama, alpaca, mohair.  Good quality, natural fibers make top-quality warm socks.  Avoid cotton; it is not warm and it bunches up. Also avoid angora.  I have three pair of wool/silk blend that are almost as nice as alpaca.  Electric socks are available, but it seems like the battery pack would be too heavy and cause the socks to fall down, so I’ve never tried them.  Thinsulate is on my Christmas list.

Pay Attention.  I can feel when I’m getting so cold that my fingers and toes are about to lose circulation.  Being aware allows me to drop what I’m doing and head inside to soak my hands/feet in warm water.  My daughter has discovered that she, too, can tell at the very beginning of an attack.  By treating it urgently, we’re both able to nip it in the bud.

Medication.  There are a few medications that can be prescribed to prevent the problem.  It’s good to be aware, too, that some migraine medications can make Raynauds worse.  Make sure that the pills you take to prevent migraines aren’t exacerbating Raynauds.

For more information, check the Raynauds Association‘s website.